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Genome Horizons:
Public Deliberations and Policy Pathways


Conference Proceedings
Table of Contents
May 15-16,1998
Marrriott Hotel at Metro Center
Washington, DC

Stephen M. Modell, MD, MS
Tahnee C. Hartman, MPH
Proceedings Editors

A Conference of the
Genome Technology & Reproduction:
Values & Public Policy Project

Conference organized by the University of Michigan
in collaboration with
the Michigan State University Center for Ethics and Humanities in the Life Sciences
with support from the Greenwall Foundation and
the National Human Genome Research Institute -
Ethical, Legal, and Social Implications (ELSI) Branch


Conference Planning and Implementation Team

Tahnee C. Hartman, MPH, Conference Coordinator
Susan Morrel-Samuels, MPH, Chair of Conference Planning Committee
Diane M. Drago, Diversified Management Systems, Conference Consultant

Saundra Bailey Anne Kelsey
Janet G. Broos Aaron Kalinowski
Eugenia Carpenter, MPP Stephen Modell, MD, MS
Toby Citrin, JD Rosemary Quigley
Leonard Fleck, PhD Lisa Siedel
James Hanschu Traci Williams
Cathryn Bock  



Table of Contents

All sections of the conference proceedings are offered in two printable formats: Adobe PDF files and HTML text. We recommend you download the proceedings in PDF format because it maintains formatting. Page numbers are indicated in parenthesis. If you do not have Adobe Acrobat Reader you can download it here.

Complete Conference Proceedings  Printer Friendly Version (85 pgs.) | HTML
(includes Table of Contents and cover)

Friday, May 15, 1998

Opening Remarks  Printer Friendly Version (1 pg.) | HTML
Introduction to the Genome Horizons Conference, Toby Citrin, JD

Keynote Addresss  Printer Friendly Version (11 pgs.) | HTML
"What Sort of Nation Shall We Be?: Genetics, Reproduction and Shared Values," Thomas Murray, PhD

Overview and Background of the Project  Printer Friendly Version (16 pgs.) | HTML
Project Overview, Toby Citrin, JD
Community Dialogues Phase, Leonard Fleck, PhD
Policy Phase, Edward Goldman, JD

Break-out Sessions  Printer Friendly Version (27 pgs.) | HTML
Session A. Privacy and Confidentiality
Lawrence Gostin, JD; Sonia Suter, JD

Session B. Access to Genetic Services
Dan Brock, PhD; Dean Smith, PhD

Session C. Reproductive Technologies
Richard King, MD, PhD; Elizabeth Petty, MD

Session D. Mini-dialogue
Leonard Webster, PhD; Leonard Fleck, PhD


Saturday, May 16,1998

Keynote Address  Printer Friendly Version (10 pgs.) | HTML
"Dialogue: A Solution to the Public Policy Disconnect?" Daniel Yankelovich

Panel Session  Printer Friendly Version (8 pgs.) | HTML
"Informing Genetic Policy: The Future of Public Participation," Linda Wertheimer, moderator

Luncheon Address  Printer Friendly Version (10 pgs.) | HTML
Georgia Dunston, PhD



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