Ethics for a learning health care system: The “Common Purpose” Framework

Ann Arbor MI 02-12-2019 02-12-2019 There is increased interest among health care institutions to transitioning to become learning health systems. In this process, however, there are increased practical and moral challenges from using the traditional definitions of “research” vs “practice” to determine which activities within such systems require IRB review and other ethics oversight, and which do not. As health systems more deliberately integrate care delivery with ongoing data collection, a set of ethics commitments for this integrated approach must be articulated. This presentation will provide an example of an ethics framework for learning health care and underscore how also being guided by commitments to transparency, engagement, and accountability around the ongoing learning are also essential, ethically.

Presented by Nancy Kass, ScD

February 12, 2019
12:00 pm - 1:30 pm
Palmer Commons, Great Lakes North Central
Sponsored by: The LHS Collaboratory is co-sponsored by the Department of Learning Health Sciences, the Institute for Healthcare Policy and Innovation and the Office of Research at the University of Michigan
Contact Information: Cindy Diakow, cdiakow@umich.edu

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There is increased interest among health care institutions to transitioning to become learning health systems. In this process, however, there are increased practical and moral challenges from using the traditional definitions of “research” vs “practice” to determine which activities within such systems require IRB review and other ethics oversight, and which do not. As health systems more deliberately integrate care delivery with ongoing data collection, a set of ethics commitments for this integrated approach must be articulated. This presentation will provide an example of an ethics framework for learning health care and underscore how also being guided by commitments to transparency, engagement, and accountability around the ongoing learning are also essential, ethically.